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Thanks, its so frustrating. We think the same...better to live a shorter happier life than a longer miserable one. Nice to meet you Anna

Sorry for jumping straight in as I'm new but we're desperate for advice. Our boy is 9 years old and was diagnosed with chronic kidney failure 18mths ago. He also had a spleen tumour at the time and had it removed. His blood test results have always been stable but he has frequent infections...